Kathleen Quinn-Farber Yup. Much more alert. Memory comes n goes depending on what is being talked abt and when. One of the aides told me that yesterday while i couldnt be there, danny was saying "kathy just has to get here" and he was asking the aide if he n i are married. So like i said, theres memory in parts. I know one thing. This whole things been a miracle in progress. And im so happy and confidant.
January 13 at 10:00pm
I couldn't get down to the rehab on Wednesday. What a surprise Thursday when I got there! Danny was wheeling himself in the wheelchair with his feet just a little, then undoing the seat belt himself, popping up outta the chair, and taking off walking unassisted and without permission. There was an aide close at his side every moment. His gait was very wobbly and unsafe on his own. They told me this went on all day long. He wouldn't leave the belt on to save his own life. They had tried tucking it under his shirt, wrapping a towel around it, even tape (which I think was an awful thing to try in case of an emergency). I pushed him back and forth on the unit from one door to the other, for HOURS! He would be fine a few minutes, or longer if he was falling asleep...then I'd see him fooling with the belt buckle. Sometimes he would obey when I told him to leave the belt alone, and sometimes he wouldn't. Richie, a respiratory therapist from another floor who came up sometimes to lend a hand with Danny, said Danny was like "Tigger" and must have a spring in his ass!! LOLOL! This need to keep wheeling and walking lasted almost until Danny's last day there.
Our love then, now, always
by Kathleen Quinn-Farber on Friday, January 14, 2011 at 1:18am
i loved u cuz u always told me not 2 worry, get sum sleep, made sure i ate, wore a coat, drove carefully. U were honest, pushed when i needed it. U respected r luv keeping things btwn us private. I was able 2 tell u my deepest feelings, knowing no1 else on earth wud hold my secrets as safe as u. When i was late u worried, paced the floor. Ur luv made me feel safe n cared 4. You listened with ur heart n soul. N u in turn felt safe letting me listen. I still recall the nite u, w/tears streaming, confessed ur luv 4 nick n i. U were a wonderful "dad" 2 nick. i loved watching how u played w/him, encouraged n comforted him n were strong enuf 2 let him dislike ur authority, knowing he was becomming a better child due 2 it n luvin u more cuz u cared that much. Life w/u was never boring. We always had things 2 do, places 2 go, goals 2 work on. Yet even in hours of silent holding, life was rich and my happiness bein next 2 u couldnt be measured.
Now this event has changed things forever. R lives are altered. The roads been rocky n will remain so in many ways. We face challenges neither u or i ever dreamed. And tho we thought we had struggles b4 w/ourselves n eachother, those things r now dim in comparison. Yet thru it all, i feel our strength as a couple carrying us. Thru those endless hours n days watching u sleep, holding your hand, hoping against hope u could feel me waiting, and the miracle of ur slow awakening, and now ur persistance at overcoming what seemed impossible...thru it all the luv i thought was as strong as it could b, grows deeper each day.
U always found a way, no matter what the problem, 2 resolve it or move us thru it. U never give up or give in. Even now u still talk 2 me w/ur eyes when words wont do. If u raise a brow i kno what it means. R story has been magic. U will prevail and i promise never 2 take ur precious heart n soul 4 granted 4 as long as we live. R love still, n always will, feel like a warm coat on a cold nite. I want us 2 parade thru this life like we r goin 2 a party, cuz thats what we both deserve
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