Monday, December 27, 2010

UPS n DOWNS...WAXING n WANING



Concerned abt dannys decreased alertness/responsiveness past 2 days. Just talked 2 nurse n requested trauma dr reassess, which they did STAT. Dr called 2 say he is waxing n waning mentally, could depend on when hes given meds, n theres no way 2 know if he will ever come further than this. Trying 2 stay calm n positive.
Teresa Tree Prayers ♥
December 26, 2010 at 2:57pm · LikeUnlike

Joan Mermon Polk Think positive, will say a Prayer for him.
December 26, 2010 at 3:07pm ·

Barbara Christman If you need me let me know. You know my prayers are there for u and Danny. Stay positive.ILY
December 26, 2010 at 3:21pm 

Kathleen Quinn-Farber Barb when this snow clears tomorrow i think nick n i will be down. With wyatt getting surgery it looks like no work all week and of course no school. I wanna think of as many sense stimulating things i can do for him like that researcher mentioned. Music, tastes, scents, sensations. I feel like he is stuck in some sort of deep well and ive got to pull him through. Ill do anything it takes.
December 26, 2010 at 3:34pm



The day after Christmas the neuro team evaluated him at my request. Yes, he had regressed a bit, but this was considered normal as one emerges from a coma. The doctor said he was "waxing and waning" and unfortunately there was no way to know if he was going to stop progressing at ANY of the phases he was going through and just stall there indefinitely or for good. The "wait n see" phrase again. He did start back up on some of his bi-polar, depression and anxiety meds from home, so hopefully this was just a side effect as he adjusted.
I also was up and down all the time, feeling very positive one moment, then scared as hell or depressed the next. I had started to try cleaning the house numerous times, but became overwhelmed and tired. I found myself crying often for no immediate reason. 
I had done some more extensive research again on coma and brain injury recovery, and resolved to try any and all things I could to stimulate his senses, and I began sneaking a dum-dum lollipop of a different flavor in for him to taste each time I visited. I also bought some scents that he enjoyed and held them under his nose, and placed very cold or very hot wet washcloths against his skin. He sucked eagerly on the pops when I put them in his mouth, and a few times stubbornly bit down on them to prevent me from taking them away. And when I put the scents to his nose he raised his eyebrows and looked at me with a half smile. It was one of the first times I could see in his eyes that he was "in there"!! He even took to winking at me sometimes :-)
With the encouraging news that Danny was evaluated for and would be accepted into Good Shepherd rehab, I got a positive energy flow and decided to tackle the bedroom I couldn't seem to get to. It was in the same disarray it had been left in the night of the accident, me looking at it almost as some sort of weird "shrine"...but Danny was getting better, and it was time to move forward on our journey again...


So tired still n woke with a massive headache. My housework is so behind n my mind feels all hazy. I dont know where to start but gotta start somewhere. Wonder how dannys doing this morning.



Ha ha danny. What i wouldnt give 2 have u barging into my shower unannounced, telling me im overcooking the noodles, interrupting me with your opinion when im trying to talk, or to see you sitting at the kitchen table completely destroying a piece of electronic equipment in an effort to fix it to perfection. I miss u so much u crazy quirky piece of work! Please come back to us :-(


Danny was evaluated today and will be moving to Good Sheperd rehab hospital tomorrow. Im making calls now to find out more info abt visiting, family participation, and the program itself. This is a positive step out of critical care, but also frightening as well. I feel anxious, happy, afraid. Another step along on this journey where we arent sure of a destination.


This is awful but its been 24 days since the accident n dannys clothes he changed from r still on the floor where he dropped them, his toiletries where he left them a mess on his dresser. I havnt touched a thing but 2 wear his pjs. I havnt changed the sheets either. Its time 2 tidy up but its hard, like im waitin 4 him 2 walk in n say Ill help u hun n then we can cuddle the rest of the nite. :-(