As I recall now all those many memories, from the time we were playfully getting ready to go out for an hour or so together the night of the accident...to the drive bringing Danny back home from the rehab, I realize there were so many moments in between that I may never recall often or maybe even not at all...little things... loving, angry, hopeful, hurtful or fearful things. I get flashbacks of images sometimes...of the things I know are stored forever in my brain, but that are only brought to the surface by some word or sight that I hear or see. And when I think back through all the obvious memories, tiny lost fragments flash out at me and I remember sights, sounds, or someone's words.
I remember that night we were out...how handsome Danny looked. How he kept catching my eye and smiling at me when someone was talking to him, as though he weren't listening to a thing they were saying. I remember saying to an old friend I saw there, "Oh, I just LOVE this guy!" It really sucks thinking back, not knowing at that time that it would be the last I'd see the one I love in that present form. The next time I'd see him he would be battered and broken, clinging to life, and no one would be able to assure me he'd ever speak to me or be the same, again.
I remember all the seemingly endless time by Danny's bed...just sitting there for hours and hours...for days, just watching his face. Waiting for a flicker of his eyelids...holding and squeezing his hands, rubbing his arms, touching his sleeping face, falling asleep with my head on his arm...hearing those ICU unit sounds...the beeping, alarms, in and out rush of the ventilator...watching monitors so closely my eyes burned.
I remember us dabbing at Danny's nose and ears as brown colored fluids seeped out, and his family and I being frightened it was spinal fluid...and the gushing thick red blood running out of his mouth almost faster than we could keep removing it.
I recall counting ceiling tiles, floor squares, counting the times people passed by the door...getting my lunches and dinners in the cafeteria and eating them in the same seat every day, looking out at traffic and realizing how complex our brains are to control such tasks, and then walking back into his room hoping for something new to be awaiting me.
I remember the chaplains stopping in frequently to comfort me and pray over Danny with us, and the kind nurses who continually suggested I go home and sleep...but I just didn't want to...couldn't leave.
And the days he became so sick...the induced, involuntary and violent coughing when the nurses suctioned him by trailing the long tube down his throat and then withdrew the tube, sucking out copious amounts of awful colored mucus. And when he was coughing on his own later, wiping up his trach constantly because there was such a terrific amount of thick mucus being forced out and running down over and under the neck brace, and I feared it clogging his airway.
I recall his torturous shivering the days and nights they had him packed in ice blankets because his fevers were so dangerously high, and wanting to crawl in bed and just cover him with my body because I knew how he hated being cold.
And the days family was there with me and we somehow managed light-hearted conversation around his sleeping form.
Once he was awake and coming through the stages of coma, I remember feeling grateful for what was occurring, but feeling sadness hearing nurses in other rooms close to Danny's, yelling, "Open your eyes!" to patients in their comas who were at the beginnings of their journeys. There were people all the time, getting hurt this way...going through this terrible thing. Life felt more fragile than I had ever believed it was before.
Those moments at the rehab...watching Danny flail in bed, squirming and looking so frightened...banging, bruising and cutting open his arms, elbows, knees, shins, ankles...wondering what he was thinking...or if he was thinking at all? Would he remember being this way?
Feeling embarrassed for him when he had to be cleaned up...and the dry humor between the CNAs and I as we wrestled him in an effort to get him clean and comfortable each time... knowing he would be mortified that he was exposed and needed help in this way, but knowing I wanted to be there to help him through it while maintaining what dignity remained in his situation. I recall feeling fearful that he might never be able to see me in the same way again because I was seeing him in the way I was now.
Watching his blank face day by day, hoping for a smile or expression...and then that glorious moment when our eyes met and I first saw recognition in his face...when he took my hand and patted it, when he puckered his lips and returned my kiss.
I can still see in my mind's eye...
his at first floppy, then overly wiry body, and then those first marvelous steps...
That raised right eyebrow sometimes, "talking" to me long before he was able to speak...
I remember the lollipops and the vanilla spray...the hot and cold washcloths on his skin...the music I played for him...the one-sided conversations with him just looking at me...all to try to stimulate his senses.
The endless pushing him in the wheelchair, and later the walking with him, for hours each day...the sitting in his bed with him and letting him kick and push the hell out of me with his feet as I struggled to keep him upright enough for his feedings to run safely in without him aspirating.
The falling into bed exhausted and sore each night.
I felt alot of fear many, many times because of Danny's memory loss and it frightened me when he didn't know his mom and I apart, or just didn't know who I, or any of us were. Sometimes he still continues confusing me with old girlfriends...but thankfully I learned and know how very normal and expected that is in brain injury recovery. The confusion could continue for a long time...but it gets better.
The daily phone calls...telling and retelling of updates to everyone and the trading of thoughts, questions, ideas and occasionally complaints with his family. Collecting my thoughts to record on my Facebook, knowing there were friends, family and acquaintances keeping us in their prayers...knowing my Facebook pages would be my chronicle to reflect upon later. And my wonderful friends on Daily Strength's brain injury forum, who guided and comforted me when I so desperately needed it. The hours spent on the internet and reading various books, trying to soak up any bit of information I could find to educate myself about what was transpiring.
The daily short twenty minute drives back and forth from Barb's to the hospital, and the hour long ones to and from home...carried out in either a trance when things weren't well, or in nervous exhilaration when they were. The roads I followed became so like a habit that I swore I could navigate them with my eyes closed.
The occasional nights we did spend at home in Tamaqua with my fruitless attempts at catching up on work in the house...my confusing masses of forms and paperwork all kept as organized as I could manage in my big notebook. The endless phone calls for appointment planning, outpatient therapies, doctors, state and federal brain injury programs, insurance issues, and other personal issues of mine or Danny's.
The awful constant strain of worry about work, bills and money. The gratitude for my employer's understanding, easing up with my scheduling during the hospitalization, and their gifts of monetary help around the holidays...the kindnesses others in our lives showed us as well.
The attempts to balance my life and Nick's with some semblance of normalcy, when all that was going on with Danny was so dominating of my time and attention. I recall the feelings of inadequacy and guilt I had as a mother, knowing Nick was somehow put on a "back burner" through it all..knowing what Danny would say about that before his accident...but not knowing how else to handle anything at that time except for the way that I was doing.
The cold, empty feeling of our bed at night... missing Danny's touch, his comfort, the sound of his breathing. And the missing him so very much in so many different ways in the things that we did daily...missing his voice and even his most annoying habits.
It had been a journey of shock and anger, sadness and fear...as well as hope and blind faith. I recall telling people at times as we progressed through it and things began to look up more and more, that although it was an event I wished had never happened, it was a rare and amazing journey that I wouldn't trade for the world. I had learned lessons in humility, love, faith, family and friendship. I was forewarned that the coming parts of the journey wouldn't be easy, and recovery would be measured not in months only, but even in years. And so I was as ready as could be humanly possible...
Why am I thankful? Because when we tell you that we're here for you we mean it! When you went off the radar I was soooooo worried about you! I didn't call because I wasn't sure what the situation was and I didn't want to interfere or catch you at a bad time. Also, I kind of got the impression that you just needed to be alone for a while. But I was worried about you and now that you've shared what was going on, at the very least, I know what to pray for, and at the very most, can see what I can do to support you and help you in any way I'm able.
The first thing that comes to my mind is that you need to forgive yourself. I mean hell, it's not like you're living under normal circumstances! I'm sure that PA has a Brain Injury Alliance (or something similar to it). These places are chock full of advocacy people who help TBI survivors and their families. My guess is that they would view your situation in a more compassionate light than any average attorney or judge. So you may want to contact them and see if they have any attorney's or a good referral to an attorney who understands the impact of TBIs on families. I think your first step is to bring people into the fold who can help you given the nature of your circumstances. I think that Danny's TBI is at the center of all of this. I don't mean that any of it is his fault. I think you know what I mean. So I think that your case and situation need to be handled with that primary issue at focus.
The Brain Injury Alliance might also have or know of family therapists that can work with all of you to help heal the wounds and bring you together in a tighter, more tolerant unit. One that pulls together in the difficult times and doesn't fall apart.
I agree with you that staying away from the booze is probably a good idea. I made the decision to do the same because I tried drinking to numb the pain and it only served to make the pain greater and put me in a border-suicidal frame of mind. Okayyyy.... THAT wouldn't solve anything. So, let's you and I both agree to nix the booze together. :-)
I'm proud of you for taking ownership of your contribution to everything. I think owning up to your role with Danny and your son will not only go a long way toward reaching a place of understanding, but will also never give them cause to doubt your sincerity.
If you need me, I'm here. I'm praying for you.
Kiki
Sweet child do not be burdened by guilt talk to oour Heavenly Father and he will releive it and give you rest.
I am praying this vvery thing for you that through this incident wonderful things will happen for allof you you, Danny your son his girlfriend all who are involved it had tocome to a head now let it be cleaned uup and bond with herbs and ointments metaphorically speaking.
Ya know our Father is a potter and he has this thing for broken and cracked pots like you and me:) Blessings of peace upon you love norma