Friday, November 4, 2011

ReMed Intake Interview and Tour

    Yesterday was the intake interview and tour of ReMed. Danny was up til almost 1:30am on the computer but for a change got up when called and got ready. How nice! We were ready and waiting when his cousin Sherry arrived to pick us up. The drive was nearly two hours. Danny of course talked most of the way.
    The meeting took place not at the actual facility, but at their administrative offices. We were taken into a board room, offered something to drink, and shortly there after Annawyn, the admissions coordinater, came in. She and I had spoken on the phone and emailed several times in the past weeks. Funny how it is when you imagine in your mind how someone might look just by their voice and what they do, but then they turn out to look nothing like that at all. I had envisioned a smallish woman in her forties with dark blonde straight hair, a heavily made-up face and an overly professional air about her. Annawynn was tall and dark, very pretty but so natural looking, and had a deep soothing voice. I could sense she was a very honest and down to earth person, which was the one thing I kinda picked up on accurately through our emailings and conversations. She briefly explained the program and admission process, telling us the typical stay is 90 days, gave me a packet of literature, and emphasized to Danny that the program is fully voluntary. Then we waited for Scott, the clinical director, who stepped in a moment later. He was friendly and warm, but calm and soft spoken. He conversed with such patience. I felt so nervous for Danny, but yet my mind was all over the place (a quite common thing for me as of late) I searched my mind for an actor Scott resembled to me....Richard Gere...yes, that was it.
    Scott talked to Danny and did an in depth history, mostly of his bi polar and OCD issues. As the conversation went on I found myself fearing that Scott was going to form an opinion that Danny's issues were too complex and of a more mental nature and that he would not be appropriate for brain injury rehab. Danny's latest fixation is about "fighting"...wanting to pick fights with others and even getting into "professional" fighting...but they are fixations, lasting usually about two weeks, and then its on to something else...but he fixated on that during the interview as well. At one point Scott noted that one of his responsibilities is to protect the other brain injury survivors in the program and that no one perceived as a "danger" to them could be admitted. What was so frustrating to me though was that Danny is a "talker" and says alot of things, but inside he is just a pussy-cat. I told Scott that in almost three years together I have never seen him be anything other than friendly and sociable with others. Sherry agreed. Danny did indeed have fighting problems in his school years, but many boys do. His only acts of aggression were aimed at me, being closest to him and maybe being the one trying to direct his actions and activities throughout the brain injury healing process. I also explained that Danny's "hitting" when directed at me, was a jab in the ribs or occasionally the side of the head. It was almost exclusively unprovoked (although Danny felt it WAS provoked). I didn't want Scott to picture Danny dragging me around by the hair and throwing punches or physically hurting me. The emotional hurt and threats when he is spealing off at the mouth, is what bothers me, and I know is very wrong and harmful. I also know from my association with the other survivors families, that this behavior is very common in about half the cases, especially if one had aggression problems in the past.
    Scott went over his drug and alcohol history as well. Danny talked alot about wanting Ativan (another more recent obsession) and complained over and over that he needs to have that given to him for the anxiety he feels come over him multiple times a day. Scott explained that it is their policy basically to avoid the use of benzodiazepines and such, and instead teach coping skills. I liked the way this place thought! Danny was on his way to real addiction problems a couple times in his life, and I feared him falling into that again. As Danny talked more to Scott, and later to Annawyn during the tour, I felt such a sense of sadness for Danny. 
The coping skills he needed for real life were never taught to him and he reminded me of a child who was so very frightened and had a tough shell on the outside...a wall all around him, to make sure he didn't leak out and that others couldn't get in. The confusion and loss of self from the brain injury was compounding that.
    I had emailed Annawyn an in depth description of all that has happened and what was going on since, and she had forwarded it to Scott, so I kept pretty quiet during the interview and allowed him to get all his perceptions straight from Danny. I filled in here and there with pertinent information. Danny has been a pro at talking and acting with doctors and therapists in the way he thinks they WANT him to, but today he was very honest and true. It scared me in a way, yet I was so glad. The time for honesty was upon us.
    Scott wrapped it up by explaining more about the program and that all the disciplines there such as psychology, OT, PT, medication management etc, come together to work on the whole person. There would be medication trials, formal neuropsychological testing, work on becoming motivated and independent and teaching of coping skills. Danny flip-flopped back and forth between saying he wanted the help and did not. The length of the stay was an issue. And at one point he got a very flippant attitude and laughing, told Scott this would just be a "vacation" for him and an opportunity to "have fun." It was one of those moments I wanted SO to shove a sock in his mouth.
    We followed Annawyn in the car to the facility for the tour. The grounds were spacious and there's a big pond with fish. She kinda warned us before we went in that the facility is an old farm house actually, and it isn't fancy. Inside we followed her through halls and poked our heads into rooms. She was right. It was very modest...quite plain really, but clean and organized. She showed us a room with a computer at which point Danny asked a million questions about being allowed to use chat sites etc. I already knew what was going through his mind...enough said. We saw a bedroom and she explained that you had to bring a TV if you wanted one, and we saw kitchens for staff and one for patients who are safe enough to cook when allowed. She told us about the meals and that extra snacks had to be brought yourself...haha, I was thinking about where they would store a two week supply of 84 Hershey bars since you can't have food in your room. That habit would have to come to a screaching halt as far as I was concerned...the focus is on healthy eating. They did have smoking areas though...I was hoping he might quit while there. In one area there was loud yelling and cursing from a patient and it bothered Danny. He complained and said that would agitate him and cause him to fight. Annawyn calmly went over coping skills...he would have to remove himself from the area if it troubled him. He said he cant do that and she explained again and reemphasized that its all up to him...if he wants the help then he will try the things told to him, and if he doesn't, thats his choice as well. It is time to change even as a person and start to find productive ways to live life. I am acutely aware that this opportunity is a huge blessing dumped into his lap. It could change his whole life in so many ways...I hope and pray he lets his walls be torn down.
    Monday the board meets to decide if he is accepted, and then the Pa Head Injury Program approves the grant money, and then its just a matter of waiting for a bed to become available.
    The three of us stopped at Boston Market to eat on the way home. Conversation was light. On the way home Danny had a yelling episode directed at me, which I ignored to the best of my ability.
    Later at home, his memory of the day was already sketchy. He didnt remember where or why we were there and kept saying that all along he had no idea it was a place for brain injury but instead thought it was a drug and alcohol rehab. I think its the word "rehab" that keeps making his mind shift that way. Anyway, today we see the neuropsychologist and cog therapist in Allentown, and will go over it again I assume. I hope he gets up and is willing to go today...
    
      

Sunday, October 23, 2011

DELAY

    Danny's cousin Sherry was not able to get Thursday off to go to the intake appt for ReMed, so I had to reschedule. They will let me know a date during the first week of November. I could have gone anyway without Sherry in order to speed things along, but I really want her to go. She seems to have a supportive way with Danny...an ability to "diffuse" some of his talk, and besides, she's his family, and I think its important she be involved. His sisters and mom, well, to be honest I havnt made them aware of this new turn of events. I have my personal reasons. When he is set to go and all plans are in place, then i'll inform them.  In actuality, its been only myself and my family dealing with this, and his immediate family does not call or ask how he is doing....I just feel if thats the case, then I dont owe a blow by blow description of every detail as it happens. I feel very very alone in this. I wanted to bring Danny back home, and still want him here. I do not want to lose him, or the relationship, or put him outta my life.......but if things reach the point of no return, then I may be forced to place  him in their laps. I almost feel as tho sometimes, that they somehow KNOW it may very well come to this, and are kinda "hiding" from this. I cringe to think of his future once that happens, but I cant put him before my family. My mom got wind of the police incedent, and some of the other goings on, and altho she doesnt understand, she IS right in her feelings I believe. ...

So I'm hangin on...we are all hanging on.......

Thursday, October 20, 2011

http://www.rogercoomer.com/

Within the first two weeks after Danny's accident, I found my way to Daily Strength (http://www.dailystrength.org), a website offering support group forums for probably hundreds of diseases, conditions, situations, bad habits, etc. I found there the brain injury forum. At first I was of course a stranger, posting random questions to find out if behaviors Danny was having were normal or not. Its very scary when you have no clue what to expect. I always received replies to my questions, but not just impersonal answers...the folks offered encouragement and support. They were real friendly, and of course in many various stages of their brain injury journeys, so I could relate both to what I'd already experienced so far, was seeing at the present, as well as could be better prepared for the coming changes too.

After awhile I began to develop closer connections, especially to the people there who were the wives, girlfriends, families and caregivers of the brain injured. Although I received  support and information from the victims themselves, when communicating with wives and caregivers etc, the connection we all felt was amazing. It was like finding people who "get it" in a world full of people who DONT! The behavior problems, mood swings, memory loss, etc etc etc....we all were going through almost the exact same things in one way or another. We understood one another in ways no one else would or COULD!

We understood the "mourning" for a person who is gone but yet still here in the same body (or a very broken body for some) and how you are trapped in a mourning "limbo" because there's no real closure. We understood the extreme exhaustion many of us have because the caretaking of a brain injured person is ceaseless and emotionally draining. "Regular" people dont "get" this, and may think its just a matter of making sure someone is clean, fed and doled out their medication. In actuality, even when all the physical things are healed, the repercussions mentally of brain injury reach into every aspect of our lives. Many of us, myself included, have gone literally days with practically no sleep, and have had to follow, chase, protect, plead with and even physically battle, our brain injured loved ones day after day. Day in and day out listening to confabulated stories and delusions, hiding keys and other harmful objects all around the house until we ourselves cant even remember where we have put them, playing referee between the brain injured and the rest of the family whose last nerve he may be on. Pleading with them to take their meds, eat right, write things down, check the calendar, take a bath, go to their therapies...
They understood the hurt of someone not remembering who you are even when you have been the ONE there for them through it all...and they understood the anger and resentment of husbands and boyfriends being stuck in the past and missing old partners or lifestyles. There's just SO much more...but the point is...they understood like no one else...like you cant know unless you live it every day of your life.
Eventually we "girls" formed our own private group where we could vent, share, laugh, cry, scream, and whatever else, more freely. We call ourselves a "sisterhood" and thats what we are. We can write, and many of us are in phone contact, always knowing someone who understands is at the other end of the line.

Enter my friend Kiki. Her husband left the house for work one spring morning this past April, and just a few moments later answered her front door to a woman asking if Kiki knew who the man lieing crumpled at the end of her driveway was. It was Kiki's husband Roger. It is assumed but not known for sure if he was hit by a car. No one has ever come forward as a witness or perpetrator. Very sad. Roger wasnt fortunate enough to make the remarkably rapid recovery Danny has. He lie for 4 mo in a coma, and after 2 mo more "wakeful" is just now responding more appropriately, trying to speak. He is immobile. More tragically, he has been riddled with infection after infection all along, and for every step forward he's gone several steps back. He is too healthy for a hospital and not far enough progressed to be eligible for brain injury rehab. His option has been nursing home care, and frequent hospital admissions all through the way.

Kiki is a special woman. Her and Roger adopted two special needs children and had a full and very busy life. Kiki is one of those people who is always doing for someone else. She has devoted every spare moment to being with Roger and using stimulation therapy on him daily...exercising his extremities, playing favorite music, talking and reading. She has been tireless. Kiki is special to me because I feel she gives gives gives soooo much to others, but is struggling terribly herself. She has spent several hours talking on the phone to both myself and Danny. She has a patient loving way. It literally broke my heart to realize she was so kind in giving herself, her thoughts, love, advice, support to US, while she was suffering the most horrific crisis herself!

Kiki needs to bring Roger home. She will need help with his care since he does not move. She needs a vehicle that accommidates a wheelchair, and a special exerciser for his muscles. She needs help with all of this. Financial help. I am hoping that you can see and feel the wonderful nature of Kiki, and visit the website for Roger. Pass it to your friends as well. With the tiniest donations from folks who care, it will add up to help my friend Kiki and her husband Roger....Thank you from the very bottom of my heart...

the link is.....

www.rogercoomer.com









Tuesday, October 18, 2011

3 AM...

                                       3 AM                                                             

3 am... the streetlight outside our bedroom window
slices this October evening with its hazy glare
intruding on our darkness
peeking through green lace curtains
and casting its path across the carpet
and over our sleeping old dog 
on the floor
at the foot of our bed.

You... in deep peaceful slumber
your snoring
a roar
in the stillness of the night
as you rest and I lie awake
pondering long trails of endless thoughts
memories.

Remembering... evenings seeming long past
arm in arm here
clinging close
comforting one another
through our storms.

Now... continuing whirlwinds
sadness and fear
so many trembling promises of hope
weaving in and out of our days
while we wander visionless
searching for our passage
through this ruthless maze.

Missing you... your beating heart
my constant
your kiss
your hands still as warm when they touch
yet now you are different
the fragments of you now shuffled
and the pieces of me as well
swirling like shaken oil and water
seeking our old places
but for the ever-moving unfairness
that unsettles the very ground on which we stand
hoping to steady ourselves
both alone
and as one.

Together... once nearly
almost taken for granted
now uncertainty
a clear sky 
with which a strong breeze
turns dark
blowing clouds over our souls
then ever so swiftly
sweeping in brightness once more
day in and day out.

My heart... attentive, weary, waiting
desiring an uncomplicated end
a fresh day for us
wondering where will our paths lead...
will they continue trailing intertwined
or part ways
like the sea is forced
to recede from the sandy shore.

3 am...


K.M.Q.F.
10/18/11

Sunday, October 16, 2011

Intake setup

    Thursday the 20th of Oct. we are set to make the trip to almost into Philly, to go through a 3 hr intake interview at ReMed, the brain injury rehab center. We will sign releases for records from Good Shepherd and then take a tour. The following Monday they have a committee meeting and make a decision on acceptance into the program, and then it will be just waiting for bed availability. Also, I was told I have to sign a "disposition" before he's admitted, agreeing he can come back home here when the treatment is done. Apparently there are people who at the end of their ropes take loved ones there for treatment and then decide they dont want to bring them back home. Of COURSE I want him back home. I also do know though that if he doesnt try to make progress anymore and doesnt improve behaviorally, I will need to discuss with his family the need for them to take him. I cant have my home upset any longer if he continues the way he is going...

   The place sounds nice...in a suburb called Paoli, and the building is actually a renovated old farmhouse. Sounds simple....

    Its not going to be that simple. While Danny was receptive to the idea initially, he now keeps saying he's not going cuz he doesn't need something like that. There's nothing wrong with him he says.

    Things are worsening here at home with him, and my patience has worn very thin. As much as I love him, if he is determined to resolve himself to giving up any hope of progress now, and stay in this awful state of denial about what's wrong in his brain...well I simply can not accept that. He has become so overly dependant on me for everything, and there is no motivation to do anything, including even to shower regularly. His attitude is, "I died and this is how I am now, so I'm just going to live...eat, sleep."
No, I dont think so. He is capable of getting better, and this place can and will help him. His short term memory is slowly regressing, largely due to the fact that he refuses to either go to therapy, as well as do what they tell him to in order to exercise his brain cells and help them re-connect. His medication situation is horrible also. In my opinion he is on way too much medication and all it does is make him sleep, and then when he is awake he gets agitated about the false things he believes to be true. He doesnt want to eat correctly and is obsessed with eating chocolate, to the tune of 12 hershey bars a day. He is gaining so much weight. He's letting himself go. I refuse to accept this behavior when there is help out there for him. I am basically giving him an ultimatum...he needs to go or else he will need to move to other family. I've done everything humanly possible to help him, but I wont just nurse him for the rest of my life. I wont tolerate his nasty talk and actions either. My youngest boy is affected and the line must be drawn. No one is more important than my children.

    When I look back at the early times right after the accident, and the terrific progress he made, it makes me heartsick. To love someone soooo much, but cant make it better FOR them....

Saturday, October 1, 2011

SEPTEMBER 2011

September....
School started the second last day of August. That helped me sooo much to get back in the saddle. Back to routines and schedules. I started sleeping better eventually, and my ambition was returning. I cleaned the house room by room, started the process of cleaning out my musky cluttered cellar. My depression was lifting.
   My car was close to finished, but I tried to keep hope that something would work out. I worked on it myself alot, and did quite well actually.
    I started reading 12 step literature and applying it to brain injury coping ability. I needed to come to terms with my role in this ordeal, in life, and in spirituality....


Changing mySELF First (thru the 12 steps) Mood
Sunday, September 4, 2011 | An Inspiring story







Step 1 - We admitted we were powerless over our loved ones TBI - that our lives had become unmanageable
Step 2 - Came to believe that a Power greater than ourselves could restore us to sanity
Step 3 - Made a decision to turn our will and our lives over to the care of God as we understood God
Step 4 - Made a searching and fearless moral inventory of ourselves
Step 5 - Admitted to God, to ourselves and to another human being the exact nature of our wrongs
Step 6 - Were entirely ready to have God remove all these defects of character
Step 7 - Humbly asked God to remove our shortcomings
Step 8 - Made a list of all persons we had harmed, and became willing to make amends to them all
Step 9 - Made direct amends to such people wherever possible, except when to do so would injure them or others
Step 10 - Continued to take personal inventory and when we were wrong promptly admitted it
Step 11 - Sought through prayer and meditation to improve our conscious contact with God as we understood God, praying only for knowledge of God's will for us and the power to carry that out
Step 12 - Having had a spiritual awakening as the result of these steps, we tried to carry this message to other families/caretakers of TBI, and to practice these principles in all our affairs.

Ok, so first of all, the first step is admitting I am powerless...not just over the TBI itself, but all the behaviors and insanity that go along with it.
HAVE I admitted that? NO!!
I keep thinking I can WILL it to change, PRAY for it to hurry up and get better, etc etc. This causes stress and anxiety. AA says to "Let Go and Let God", and this is what I must do...also, it will in turn I think, sorta release me from feelings of anger and resentment toward the TBI and towards Danny as well. Yea, he's got some old bipolar crap coming back that is hard to deal with, but (hangs her head in shame) lately I have resorted to yelling at him, demanding he stop doing things, calling him names even at times, and accusing him of only remembering what he chooses to. Where I once felt I was doing a good job, I feel lately like I have been falling short every day. In harsh reality, the answer for ME lies not in what HE does, or how he changes, but it lies within ME!! I need to let go...detach with love...AA says to live one day at a time (I've got that one down pretty good) but it also says that in times of hardship or struggle, your only task that is manageable is to KEEP DOING THE NEXT RIGHT THING!! Reacting in anger or immaturity gets me nowhere...I need to slow down and breath...every moment if I need to, and just keep doing the next right thing. It IS hard work...esp for someone on the lazy side like me when it comes to self-help. I can ONLY change mySELF!! And as many a wives in al-anon have learned, that loving change SOMETIMES induces change in the other person.I need to work on changing my own actions...after all....with or without Danny, I want to be a better person right? At the present time, this is what I have chosen to do...caring for this TBI....well, I will MAKE it a learning and growing experience for me....soooo....thats where I'm at today....will keep you all updated....

After our August incident with the police I had started to withhold Danny's ADHD medicine. I experimented with off and on days and could see the apparent negative behavior when he took it. I notified his neuropsych Dr. D. that I was doing it. Danny was just too much of a handful on the med...so full of anxiety he was up all nights and days, actually stamping his feet and waving his arms in the air all the time in his restlessness and anxiety....crying sometimes. Well in Sept. when we visited the psychiatrist, he stopped the Vyvanse (as I had already done)  Danny was FURIOUS! For days he became angry, smacked me a few times over it, cried, hollered, demanded immediate dr visits to get it back or get a nerve pill. The truth of the matter was, he was so much better without that medication...but he didnt see it that way. I began to fear that his addictive personality really only wanted that medication as a form of "speed"....and he talked often about wanting to buy cocaine and speed. It was upsetting.
    He had talked about buying alcohol too, but I always talked him out of it, but one day when we were out running errands and things, he had his own money in his pocket and went into a store and bought some. That night he didnt finish it (it was only a quart of beer)  Another night soon after he decided to get ready and walk to a bar at 1am. He stayed an hour and came home. He hasnt drank since (its Oct 13)
    What it was boiling down to is that Danny has stalled in his recovery, isnt motivated to try, has given up.....

    In the 3rd week of September we had a HORRIBLY frustrating and busy week of appointments, and of course this was when my car finally decided to kick the bucket for good. We broke down on the interstate and had to hitch hike part way home and my son brought us home the rest of the way. The following day was Danny's disibility hearing. Barb took us. The day was one of the most nerve-wracking with Danny I can ever remember. He was a babbling, nervous wreck in the car, yelling, reaching into the front of the car, carrying on, almost crying. What a day. Barb, like so many others, said she didnt know how in the world I possibly kept so strong as I did. 

Thursday...the knot at the end of my rope Mood
Saturday, September 24, 2011 | A Painful story
Wednesday was another in a week of nightmare days. We headed for the lawyer and the prehearing meeting. Its an hr away. The car overheated and we stopped to call and ask if 15 min late would be ok. They said it was fine. When we got there the lawyer we were told, "had to leave"....I was FURIOUS!!! A trip with my car that was on its last leg....for NOTHING!!!! The story is long, but in the end, the car futzed out on the interstate on the way home and we were stranded. We hadda hitch hike to get off the interstate(a trucker picked us up) and then my son came to get us the rest of the way. Thursday my friend Barb took us to the hearing an hr away. Danny was outta control....not nasty or anything, just severely agitated and yelling and upset and wouldnt stop talking and interfering in the drive and ...oh it was just awful. He won his case for disability but just from the date of the accident last December. On way home Barb used her triple A to get my car towed. Its done. Danny was so full of anxiety and annoying Barb to the point of her wanting to beat him over the head. His meds are not working and the brain injury stuff on top, and just what a nightmare. Its like NOTHING gets thru his thick skull now. He doesnt remember the simplest of things. He's getting worse with that.







On top of that my car is shit-canned. I have at most 600bux to work with. He cant get to his appts, I cant get to work if they call me. When he told his sister abt it on the phone other night I told him to tell her that the family now has to pull together and help him too....she said "Yea, we'll talk abt it then"   Yea, that means I can expect nothing. 


There is so much more. I waited several days to write this so that I wouldnt go into such horrid detail. But this is what it comes down to
I love Danny fiercely...I will try ANYTHING to help him get better. But I will also face reality. If he doesnt try to do for himself, then I have to move on. I love the person I see inside of him. He is riddled with mental disorders. The love of my God inside me tells me I would not want my very last supporter in life to turn me away. He cant help he has all this.....but he CAN help that he can try to work thru the memory and brain injury stuff, and he can let ppl....professionals, help him. And if he cant do that then I have to give up...
I dont want to...but reality is reality.

What a ramble....I hope it made some sense.







Tuesday, September 27, 2011

RESIDENTIAL TREATMENT FACILITY



Residential treatment? Mood
Saturday, September 17, 2011 | A General Update story
So...when we were at the neuropsychologist Friday, we were thrown a curveball. Dr. D thinks Danny should go/would benefit from some time away in a residential treatment facility for brain injury. He didn't say for how long, but mentioned the phrase "several weeks" a couple times. Danny is "stuck" in his brain injury recovery...he has a severe denial that there is anything wrong with his memory at all, even when its proven each and every day by how he cant remember the simplest things. He wants to get to the point where he can either work or go to school, but wont get it thru his head that he needs to improve his memory and all the other stuff that goes with it. He refuses to do what the therapists tell him to, like write things down, use the calendar, use the other compensatory skills they are trying to teach him. Half the time he wont even get outta bed and get ready to GO to therapy. So I guess the dr's thinking is that by going into this place for awhile, he would have intensive everyday therapy done with him, and be helped to learn some skills to be more independent. Right now he depends on me to tell him to do every little thing...EVERYTHING. He of course denies this. The dr said "ok Danny. If Kathy were to say, 'I'm not reminding you anymore', and had you track your appts on a calender yourself, set your own alarm, get up and get showered and ready on your own, and then tell her you were ready cuz its time to go...would you be able to do that?"  Of course Danny said "yea"  OK...he doesnt do anything unless I remind, coax, threaten, nag, sometimes yell.  Another plus would be that there is a neuropsychiatrist there, and maybe this mess that his meds are in could be straightened out.
The Pennsylvania Head Injury Program would fund the stay if he'd be accepted. Dr D is looking into it and highly recommends he do this. I dont think Danny really understands what it entails. I dont even wanna talk abt it with him yet cuz I think he will just say I'm "putting him away" or worse, he will think I want to carry on with someone else while he's gone, cuz thats how suspicious he gets. He did say he thought it would be good when Dr D talked abt it, but i'm sure he's forgotten now. So I will allow time for it to be brought up by the dr some more. The process will take a fair amt of time to come to fruition anyway if it does happen. The program will receive a referral, has to send to the rehab for his records, come to the house to assess him, etc. By then maybe Danny will become comfortable with the idea.
So the place is in Philadelphia, and its called ReMed. I went on the website briefly to see (remed.com) but have to take some time to read in detail. Just playing it by ear for now....

Comments

  1. blueguitargirl
    Also...I think the drs and therapists can see that we are slowly reaching a crisis point here, and that I need a bit of a respite as well. We cant go on this way...we are at an impasse.
  2. wtd13
    Assuming this is a decent facility, I think this would be a great idea. It would give you a much-needed break AND I think it would be helpful to have others, without any emotional attachments, work with him. Also, the program may help him get into more of a routine doing the things he needs to do on a daily basis.
  3. normaeh
    It sounds likea good way to havehelp for hi. Wadewas in rehabfor over 2 onths I think this is why we get over the hurdles
  4. macdingolinger
    It sounds like it might be a good idea at this stage in the game. I know it is a difficult decision, but if they can get him over the hump it would be great... and you wouldn't be the "bad guy."
  5. Lyndee1968
    I think that is wonderful Blue.... if Danny would just agree to it.... get SNAP to talk to him about it..... or KIKI..... :)
  6. PearlyLegg
    Yes I believe Danny does need that same rep everyday same time rep will really help him . OT, Pt, ST would be great for him . I think sometimes we the care givers have a hard time to let go and Let the professional do their work .Which will make a big improvement. Just keep in mind your not abandment him but looking forward to the furture having him back at home as Danny before the accident happen or close to it. But it doesn't happen overnight it does take time getting him in there . It's been 3months now For Rick and he has got placed yet on a waiting list .Hopefully next month. Good luck . Pearl & Rick
  7. Kiki123
    Ohhh! I LIKE this idea a lot, Kathy! And I think letting the doctor be the one to "get him" there is the way to go. I'm glad that he responded favorably to the doctor suggestion.

    If it is a good facility and they are able to help him, just think how much nicer life would be for both of you as a result!
  8. wildflowercat
    That sounds so good, Blue. It has seemed from what you have said that Danny is stuck. I certainly dont think it would harm him and he might realize what you actually do for him. Be like Kiki and dont stop until you get what you need.!
  9. ZenobiaSnapDragon
    This could be the extra boost that Danny really needs! And a much needed respite for you as well!!! I think it is a great idea!!!
  10. tiffany81409
    o wow. i mean i guess it's a good idea if he just kinda gave uphope, ya know? bceause you do everything in your power everyday to help him. & you have done that from the start. if he doesnt want help here then he isnt going to take it ifthat makes sense? when you do tell him i could see him getting angry. &; with your other entry how his sis said "we'll talk about it..." i'm sorry but thats just downright being a bitch. like thats your fricken brother and you have to "talk" about it?!?!?! like wow... they need a slappin around or somethnigg.


The neuro doc wants to get him in a residential treatment center. I think...I KNOW thats best. He needs intensified treatment. I dont want him to think i'm giving up on him, but really and truly, if he is giving up and wont try to get better, I have to go on without him. I have done everything in my power to get him thru all this. But I cant live in a state of limbo where he gives up and thinks this is as good as it gets and live with the daily drama. I am not gonna have my smaller child, as well as my 20yr old son, believe that I will keep doing this and put them thru it. I am so confused.

I told Danny last night that he is going to this residential place, and if they tell me he isnt trying or isnt getting better, then his family will have to take him and do whatever. Idk what else to do. I love him sooo much, and NO ONE cares abt him like I do...no one has tried to believe in him like me....no one has been more patient and perservering....I wanted him to get better. Before all this happened he was getting better on his bipolar meds etc. We were starting to set goals....a house of our own...a life....perhaps even a child despite my age. Now it all seems like a cruel joke. I have a hard time admitting that I cant do ANYTHING abt this....cant MAKE HIM SEE....